So I've just decided that if someone from Italy who I have no idea who it is wants to follow my boring blog shouldn't I try to get more followers. I figure that the Italian probably googled the last name and ours came up.
So as part of the title I am putting the name of Joe's syndrome so maybe someone will google it and this blog will come up and maybe then we can find someone else with a family member with it. If you have a family member with this syndrome please contact us. Thanks.
Love My Brody
4 weeks ago
3 comments:
Hi,
Me and my husband lives in Sweden with our two kids. Our doughter hwo is 3 years old has mpph syndrom.
It would be great to hear about your family and Joe of course.
Send me an email:
linda-levesque@hotmail.com
Would be great to hear from you!!
Linda
Hey Michelle,
Our daughter who is a little over a year with just diagnosed with Dr. Bale this week with MPPH syndrome. We live in Orem and I would LOVE to talk with you and meet your cute Joe and you can meet our sweet Nora. You can send me an email, call or text. Email is:
heatherfriden@gmail.com and phone number is 801-318-7396
We would love to hear from you
Thanks,
Heather
Hello Michelle,
Our son Adel (5 months old) has been diagnosed with MPPH. My wife and I would love to connect with you.
My email is aaladwani@hotmail.com.
Thanks,
AJ
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